Tag: special needs
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Does God Care?
A few weeks ago we were facing some difficulties that I felt like I didn’t really deserve to face. Partly because it’s something we’ve been dealing with on and off for years. The background My son has had in-home nursing since he came home from the hospital, medically fragile at 3 months of age. About…
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Are You Okay With Slow Growth?
As a special needs mom, I want results, and I want them now. When my son was younger there were many hopes and dreams I had for him: eating by mouth, talking with a trach, and walking. I pushed him hard at times. We went to physical, occupational, and speech therapy outside of our home…
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So you didn’t know you were grieving?
Riding the roller-coaster of grief Our son’s diagnosis came in 2006 while I was twenty weeks pregnant and expecting a perfectly healthy baby. On “D-Day” or diagnosis day, our world was shattered, and I began to grieve. This grief came not at the permanent loss of a person, but the loss of a dream of…
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What do you fear most as a special needs mom?
As a result of expecting our son with special needs around the time of Christmas, I felt like I could really relate to Mary. As special needs moms, we have a lot in common with her, I think. Now, don’t misunderstand me here. I don’t believe that Jesus was a special needs child, but He…
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Have your plans been turned upside down?
Mine have. Repeatedly since July 26th. At least from a medical standpoint. I feel like all we have been doing lately is waiting or readjusting our plans. Toby’s shunt is not working properly. Again. It’s not an emergency, but he needs a procedure to draw fluid out of his abdomen and then we have to…
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Podcast Launch
An Invitation I want to invite you to be encouraged by a podcast that we’re launching. It’s called Take Heart: Special Moms Podcast. It’s a podcast of hope, joy, and encouragement for special needs moms by special needs moms. It Launches September 1st Each month, we choose a topic— such as: Diagnosis, Faith, etc. and…
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My Story
I was 20 weeks pregnant with our third son when our world was shattered with a prenatal diagnosis of Spina Bifida (specifically myelomeningocele- he was born with an open hole in his back), Hydrocephalus, and Chiari II Malformation of the brain. Life further took a turn for the worse just two weeks later when he…
Carrie M. Holt 